As it says above. I’ve been told that my GP surgery will exclude me as a patient.
I’m very worried and not sure what I do. I looked for help in November and got nowhere. I kept asking for my repeat prescriptions and ultimately that’s what I did wrong.
I asked for another repeat prescription before Christmas as I knew my medication would run out over the holiday period.
I made the request on the 21st December, tried collecting it on the 22nd. The pharmacy said they didn’t have the drug in, so I left it with them.
On the 29th I tried to collect again to be told they had no stock. I was out of tablets at this point. I was given back the prescription. No one contacted me to say there was an issue and I was disappointed, but had to walk into town in any case.
I went to the biggest pharmacy/chemist in town and they were surprised I couldn’t get it from my regular pharmacy. I showed my white Autism/ASD card in case I wasn’t making sense. Fortunately they had the drug and the type I normally get.
I was relieved. Did some shopping and walked back. I realised the GP surgery was open and I wanted to query my dose going down.
I had previously been told by the GP that I may want to step down my dose, but at the same appointment I had said I was applying for PIP and had my appeal.
The doctor expressed surprise when I said that and I very much felt disappointed as they didn’t seem to understand that I needed ‘help’ too.
My PIP meeting or first tribunal was soon thereafter and the result effectively ‘broke’ me. I felt the panel was fair apart from the GP Doctor that used verbal tricks on me, effectively saying I worked, I drove. Much the same as the PIP claim manager’s view.
At that point, I was existing and I just kept going to get through the spring and summer. I got casual on taking my prescription and some days didn’t bother.
I had a bad time in October and November with a crisis point and again, I kept going. I placed in repeat prescriptions, I took my medicines more regularly as I knew I was on edge and struggling.
At the middle of November I asked for usual repeat prescription and used the paper form in surgery to do so. It was light of the smaller part of the dose. I firstly thought it a mistake at the pharmacy, then it clicked and I realised I was probably being stepped down.
Now, at the time and as I said, I was struggling. I didn’t have any excess tablets or anything to keep me at previous dose and I realised I was struggling and that I was further down and further prone to outbursts and to meltdowns.
I had a few incidents before Christmas and I struggle with the period due to issues with family. I had a disappointing contact with a family member before Christmas too.
All in all, not in a good way and very much keeping going at the level of medication and through daily routines and keeping myself right.
I probably found over the period that regularly drinking coconut water for the potassium and eating plain yoghurt to help my gut bacteria did me some good physically and mentally.
So, a few difficult months, a major setback in getting help with ‘PIP’, a crisis point at the end October and start November and a dip in mood and motivation.
I snapped at the surgery on the 29th December. I had just been disappointed by the pharmacy next door with the prescription. I knew the prescription was ‘light’ and didn’t like idea of having to ask for the additional amount.
It was a milder day than some over the period. I had to take my jacket off as I waited. I was foot tapping/ moving and there wasn’t anyone else there or waiting.
I tried to be polite with receptionist, but maybe I was struggling.
I waited. Was told to ‘sit down’ and I maybe didn’t like tone or way I was told that. I saw the two Doctors talking and phones were answered and I got aware of time and that I had bags and shopping and that I needed to get home and put it away.
I realised I was hot and realised I had to see kids and do things.
I started to go. I think the receptionist said something to me, I tried to get to the doors, but one of the doctors got on my way.
By that point I had gone. Melted down, I can’t remember what I said but I was angry and shouting and unhappy, I just needed out of there.
There wasn’t a point of return. I had had enough. Shouting and the frustration of everything got to me.
I don’t think I swore. I may have. I didn’t refer to anything physical or otherwise about the Doctors or receptionist.
It was pure frustration and an autistic meltdown.
I tried to relay this at my appointment on Friday, it probably came across as a rant.
I never really got across that I needed help. For all the words, no-one got that. No-one saw the hurt and pain and stress and anxiety.
They just saw an individual being rude and shouting angrily. I must have a more limited range of facial expression or affect than I suppose too.
Which is fine, they have to do what they have to do, except for the fact that by excluding me from GP healthcare, they are doing the same for my young sons, one of whom has classic autism and is non verbal.
My condition is such that I’m embarrassed now to approach another GP surgery. I’m feeling very hurt by the decision and I feel my condition and needs haven’t been taken account of.
I haven’t had much help after being diagnosed as autistic and I’ve struggled on with the drugs and trying my hardest not to lose my job and not to lose my children.
I might present as someone polite and intelligent and not too much of a problem or an issue, but surely my notes or the patient systems flag what I have.
I’m disappointed and hurt over this and I have no idea where to turn.
I’m dreading getting the letter.